APSCA Harford, Cecil, and Eastern Shore

03/14/2025

Please contact your Congressional representatives. Ask that they don't cut healthcare. APSCA Harford, Cecil, and Eastern Shore

This concludes our week of action. I hope you continue to push our representatives to serve us and our wonderful SC Warrior community. Educate them on our wonderful people because after all we are only seeking to find a cure and assistance in care for it.

Respectfully,
Sarahia Benn
President/CEO
APSCA, INC.

03/13/2025

Call your representatives!!!!
APSCA Harford, Cecil, and Eastern Shore

03/12/2025

Federal Update – Medicaid & Medicare Cuts
Congress and the President are planning massive cuts to Medicaid and Medicare to accommodate a tax break. These cuts will disproportionately impact individuals with sickle cell and other rare diseases. The federal government shutdown deadline is March 14, 2025, if a budget agreement is not reached. We urge you to email, call, and advocate to your federal representatives and leadership to stop these cuts.

What You Can Do
📞 March 11, 2025, at 11 AM – APSCA INC Dial & Email the Feds Hour today take an hour and call and email.
Join us in calling and emailing Maryland representatives to oppose Medicaid and Medicare cuts and push for increased funding for rare disease treatment and research.
📢 Week of March 9, 2025 – Social Media & Community Advocacy
Share APSCA INC’s social media posts to spread awareness and encourage others to take action.
Facebook: https://www.facebook.com/APSCAHarfCeES/
Instagram: https://www.instagram.com/apscaharcees/

🏛 Contact Your Maryland Representatives
U.S. Senators
Senator Angela Alsobrooks – (410) 546-4250 | Contact Form
Senator Chris Van Hollen – (202) 224-4654 | Contact Form
U.S. House Representatives
District 1: Andy Harris – (202) 225-5311 | Contact Form
District 2: John Olszewski – (202) 225-3061 | Contact Form
District 3: Sarah Elfreth – (202) 225-4016 | Contact Form
District 4: Glenn Ivey – (202) 225-8699 | Contact Form
District 5: Steny Hoyer – (202) 225-4131 | Contact Form
District 6: April McClain-Delaney – (202) 225-2721 | Contact Form
District 7: Kweisi Mfume – (202) 225-4741 | Contact Form
District 8: Jamie Raskin – (202) 225-5341 | Contact Form

📱 Apps for Easy Advocacy
5 Calls – Provides contact info and scripts for calling representatives.
Resist.bot – Sends letters to representatives via text, Facebook Messenger, or Twitter.
Your voice matters! Let’s stand together and fight for healthcare access for our community.
Respectfully,
Sarahia Benn
President/CEO
APSCA Harford, Cecil, and Eastern Shore

03/11/2025

Federal Update – Medicaid & Medicare Cuts
Congress and the President are planning massive cuts to Medicaid and Medicare to accommodate a tax break. These cuts will disproportionately impact individuals with sickle cell and other rare diseases. The federal government shutdown deadline is March 14, 2025, if a budget agreement is not reached. We urge you to email, call, and advocate to your federal representatives and leadership to stop these cuts.

What You Can Do
📞 March 11, 2025, at 11 AM – APSCA INC Dial & Email the Feds Hour today take an hour and call and email.

Join us in calling and emailing Maryland representatives to oppose Medicaid and Medicare cuts and push for increased funding for rare disease treatment and research.
📢 Week of March 9, 2025 – Social Media & Community Advocacy
Share APSCA INC’s social media posts to spread awareness and encourage others to take action.
Facebook: https://www.facebook.com/APSCAHarfCeES/
Instagram: https://www.instagram.com/apscaharcees/

🏛 Contact Your Maryland Representatives
U.S. Senators
Senator Angela Alsobrooks – (410) 546-4250 | Contact Form
Senator Chris Van Hollen – (202) 224-4654 | Contact Form
U.S. House Representatives
District 1: Andy Harris – (202) 225-5311 | Contact Form
District 2: John Olszewski – (202) 225-3061 | Contact Form
District 3: Sarah Elfreth – (202) 225-4016 | Contact Form
District 4: Glenn Ivey – (202) 225-8699 | Contact Form
District 5: Steny Hoyer – (202) 225-4131 | Contact Form
District 6: April McClain-Delaney – (202) 225-2721 | Contact Form
District 7: Kweisi Mfume – (202) 225-4741 | Contact Form
District 8: Jamie Raskin – (202) 225-5341 | Contact Form

📱 Apps for Easy Advocacy
5 Calls – Provides contact info and scripts for calling representatives.
Resist.bot – Sends letters to representatives via text, Facebook Messenger, or Twitter.

Your voice matters! Let’s stand together and fight for healthcare access for our community.
Respectfully,
Sarahia Benn
President/CEO
APSCA Harford, Cecil, and Eastern Shore

03/10/2025

Federal Update – Medicaid & Medicare Cuts
Congress and the President are planning massive cuts to Medicaid and Medicare to accommodate a tax break. These cuts will disproportionately impact individuals with sickle cell and other rare diseases. The federal government shutdown deadline is March 14, 2025, if a budget agreement is not reached. We urge you to email, call, and advocate to your federal representatives and leadership to stop these cuts.

What You Can Do
📞 March 11, 2025, at 11 AM – APSCA INC Dial & Email the Feds Hour

Join us in calling and emailing Maryland representatives to oppose Medicaid and Medicare cuts and push for increased funding for rare disease treatment and research.
📢 Week of March 9, 2025 – Social Media & Community Advocacy

Share APSCA INC’s social media posts to spread awareness and encourage others to take action.
Facebook: APSCAHarfCeES
Instagram: APSCA
🏛 Contact Your Maryland Representatives
U.S. Senators

Senator Angela Alsobrooks – (410) 546-4250 | Contact Form
Senator Chris Van Hollen – (202) 224-4654 | Contact Form
U.S. House Representatives

District 1: Andy Harris – (202) 225-5311 | Contact Form
District 2: John Olszewski – (202) 225-3061 | Contact Form
District 3: Sarah Elfreth – (202) 225-4016 | Contact Form
District 4: Glenn Ivey – (202) 225-8699 | Contact Form
District 5: Steny Hoyer – (202) 225-4131 | Contact Form
District 6: April McClain-Delaney – (202) 225-2721 | Contact Form
District 7: Kweisi Mfume – (202) 225-4741 | Contact Form
District 8: Jamie Raskin – (202) 225-5341 | Contact Form
📱 Apps for Easy Advocacy

5 Calls – Provides contact info and scripts for calling representatives.
Resist.bot – Sends letters to representatives via text, Facebook Messenger, or Twitter.
Your voice matters! Let’s stand together and fight for healthcare access for our community.

Respectfully,
Sarahia Benn
President/CEO
APSCA Harford, Cecil, and Eastern Shore

01/28/2025

🚨 BREAKING NEWS 🚨

Donald Trump issued a sweeping memo on Monday, halting ALL federal grants, loans, and financial assistance programs. 😱

📄 In a memo by Matthew J. Vaeth, acting director of the White House Office of Management and Budget, federal agencies have been directed to temporarily pause all programs to align them with Trump’s agenda.
🚫 This includes bans on diversity, equity, and inclusion (DEI) initiatives and limits on clean energy spending.

❗️ What does this mean?
This decision jeopardizes critical funding for:
🔬 Sickle Cell research
💊 Gene cell therapy
🤝 Community-based organizations (CBOs) providing support to the Sickle Cell community

This is not the first attack on marginalized and disabled communities. Last time, Sickle Cell gene therapy was completely removed from the budget. 😡

💔 Why would any administration choose to harm disabled individuals and communities in this way?

Please contact federal representatives today to make your voice know today that this is unaccdptable. These are our tax dollars, not those running it.



📚 Read more: HuffPost Article

https://www.huffpost.com/entry/donald-trump-grants-loans-freeze_n_67984689e4b00dc186534c4f?fbclid=IwZXh0bgNhZW0CMTEAAR1zc2wHBX6dsTrz6k6rKvUnWdXB7Y_Wnq8x9dBrZ9P5NKSCRkoXfQaSkmY_aem_9g431UQY96UeqpQi-Tx5PA

01/14/2025

🩸 Blood transfusions are a lifeline for many sickle cell warriors, yet less than 10% of Americans donate blood. 🛑 You have the power to change that! 💪

This January, during National Blood Donor Month, 🗓️ join us in supporting a healthy blood supply. ❤️

👉 Pledge to donate through our virtual blood drive and make a lasting impact: https://buff.ly/3PhSz6v

🌟

01/13/2025

The Centers for Disease Control and Prevention (CDC) created a fact sheet to help sickle cell warriors and their caregivers prepare for an emergency room visit. Download this resource today and implement tips to improve your ER experience: https://buff.ly/40gw9aQ

01/13/2025

The sickle cell community has many strong advocates and Frank Reddick was one. We would like those to celebrate his memory in passing last month. May he rest.

Frank Reddick passed on Dec. 23, 2024. Frank was the president and CEO of the Sickle Cell Disease Association of Florida, an SCDAA member organization headquartered in Tampa. He was a steadfast sickle cell advocate and was the head of the Florida state sickle cell chapters. As a former Tampa city councilman, Frank was a respected leader in his local community.

APSCA Harford, Cecil, and Eastern Shore sends our sincerest condolences to his family, friends and loved ones.

Click here to read more about Frank: https://buff.ly/4j2Idoq

12/24/2024

As an organizational member it's imperative to spread the word if good news and good resources.

Like and share
APSCA Harford, Cecil, and Eastern Shore

"Have you signed up for the SCDAA and MedicAlert Foundation pilot program? This groundbreaking initiative is aimed at improving emergency care for sickle cell warriors by streamlining diagnosis and treatment in the ER. Available in all 50 states, this program is making a positive impact on the SCD community."

Find out more today:
https://buff.ly/3Nc5JBs

12/24/2024

For SC warriors anyone in our community. Spread the holiday cheer!

APSCA Harford, Cecil, and Eastern Shore

10/23/2024

You have around 35 trillion red blood cells moving around your body at all times. Typically they are rounded and flexible. What happens when they aren’t?

09/29/2024

Registration is Open: The 52nd Annual National Convention will be held from October 23-26 in Atlanta, Georgia! SCDAA’s Annual National Convention fosters the exchange of the latest scientific and clinical information through innovative training seminars and educational workshops, interactive panel...

09/26/2024

No insurance required.

09/25/2024

09/20/2024

https://www.instagram.com/sicklecell101/live/17940207746877129?igsh=MW1hb3Yzc3Bsang3aQ==

Please tune into the video if you have questions or concerns about Sickle Cell Anemia!

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